Saturday, March 8, 2014

Bloggers Unite for EndoMarch: Week 9 - Last Minute Thoughts


The Million Women March is just a few days away! I'm a bit late to the party for the last couple of weeks worth of blog posts, and I'll just say that it is challenging to work, intern, go to grad school, and do all the things I want to do! I'm doing my best to keep up, but unfortunately, the blogging fell behind. In any case, we had a great time last week at our Yellow Flash Mob for Endometriosis to raise awareness for the EndoMarch! We received a generous donation from family and friends that allowed us to purchase a camcorder to bring along on our trip to D.C. and I am grateful that we will also now be able to make videos for Ask Me About My Endo. You can find the first two here: 




Yellow Flash Mob in Boston: Singing and Dancing to Let It Go from Frozen, and a speech from yours truly!


Our first video update on Ask Me About My Endo! Thanks to this camcorder, we will be able to cover the March for those who might not be able to make it to the event! We will be taking photos and posting them on our Ask Me About My Endo facebook page, and will upload videos once we are able to upload them. I'm so excited to be able to share our experience with you all!

I went out and bought some yellow accessories for the big day, but I must admit...I haven't had the time to start packing. I am kind of nervous, but I know this is going to be an amazing experience! I'll be attending a Girls Night Out with my fellow Endo Warriors the night before, which I think is going to be awesome. It is always an uplifting experience to speak with other people who have endured the same trials and tribulations, and I know that I'll be meeting some very dedicated people. 

On a sadder note, today marks what would have been 20 weeks into my pregnancy that I lost this past November. It seems no matter how many days, weeks, or months pass, when I realize where I should be, it never ceases to take my breath away. Today, we were walking through a furniture store, and I couldn't pull myself away from the crib I had picked out so many months ago that we never purchased. I just stood there, stroking the smooth grey-painted wood, and had to tell myself that I needed to purchase my airline tickets, not an empty crib for the baby that I couldn't carry. My heart aches every time I think about the belly I should have, and the moments I should be cherishing in a few short months.

March is endometriosis awareness month. Awareness is not just about wearing yellow. Awareness is not always pretty and pleasant and easy to talk about. No, awareness is sharing what we might otherwise keep to ourselves about how endometriosis affects our lives. Besides pain, endo has affected my ability to have a child. It has been a year and a half that I have been trying for a child. Today, I should be 20 weeks pregnant, but instead, I am planning for another surgery, my third in two years. This time, we may remove my left Fallopian tube. Endometriosis has taken many things from me, but today, I am thinking of my baby that was, and those that may have been without this disease.

4 comments:

  1. I am so sorry for your loss. This is a horrible, horrible disease. Sending you love. You are doing amazing advocacy work!!

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    1. Thank you so much, Casey! Thank you for taking the lead and getting this blogger project up and running!

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